Kalydeco is a new drug that has finally been funded for 4% of CF sufferers in England with the G551D gene mutation. It's the first of it's kind, it should improve lung function, clear all the mucus out of lungs and sinus etc and generally improve quality and length of life. However, this is not a cure. But it IS something that should prolong life expectancy and with this we may be able to find help for other gene mutations.
I have the G551D gene (yay!) I have just started on Kalydeco so keep up with my blog & see how I get on :)