I feel like I've hit that oh-too-familiar downwards spiral that I recognise from pre-Kalydeco days.
Over the past few days since I last blogged this cough has started. First of all it was your usual 'I've got a cold' tickley cough. Thursday night I was feeling pretty flushed and my temp was slightly up, not too much so wasn't particularly worried. But overnight my cough changed, I woke up at 6 for my tummy meds and was coughing away for a good few minutes. Not impressed I chugged down the meds and went back to sleep hoping it was just a bit of post-nasal drip that had set me off.
I woke up a few hours later and felt all out of it and my cheeks were bright red. My cough was further down my throat and so painful. Luckily the thermometer was right by my bed so I reached out for that - 37.8 shit. I've had temperatures way worse than that before, don't get me wrong, but the fact it was nearing to 38, I was coughing & judging by the way I felt I knew too well this was how my chest infections begin. I tried to dose in and out of sleep all day Friday but I kept coughing just as I was dosing off and it made me jump!
My friend Katie came to cheer me up in the evening so we had a lovely chilled girly night.
I realised at the end of the day and checking my temperature, popping pills and all that malarkey that after 3 or 4 hours my temp was right back up. My heart sank. Usually I used to have a temp and it would go and stay down for a fair bit, but the past two times I've been really ill it's been hard to manage. Yes again I know it could be a lot higher and it has been a lot higher but 38 is pretty high and I just can feel something inside that's taking me back down that slope.
Today I woke up, same thing but my cough again had moved further down and now it sits and the top of my chest which is bloody agony! Every time I cough it feels as though my collarbones are breaking. My temperature is doing the same thing.
Also, I feel like I have an elephant sat on my chest permanently, so if someone could remove it I'd be most grateful! :)
I've got Jess over this evening for a film night in, we were meant to be going out for some drinks but it's too much of a struggle. I managed to go out for a little while earlier to buy some fondant to make cupcakes for mum and dads 25th anniversary on Tuesday but that was hard, every time I cough when I'm walking I feel as though I'm going to pass out!
So we will see how I go over the next couple of days. I have a clinic appointment on 4th October so just under two weeks but if this carries on I think IVs are inevitable - not what I want as it's two weeks off work :(
It really is scary when you lie there at night with a horrible temperature, coughing literally every 10seconds (if that!) especially when you've had such bad experiences in the past, it immediately brings that flooding back. My breathing varies throughout the day, seems to be worse in the evenings but I've got my lovely nebs! I'm really hoping these orals that I'm on kick this right in the balls so I don't need IVs or hospital and I don't get as sick as I have been before. I'm willing my little lungs to keep going, I really don't want to start heading back to being very ill, unable to walk far. You never know how you're going to be though, the fact this has all started in a matter of days you can't tell if you'll become very ill very quick or if you'll be fine after some orals and week of rest. So you've just got to make the most of what you're doing now and keep plodding on :) only thing to do!
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