Tuesday, 27 August 2013


I'm back from Ilfracombe, we had such a lovely time.....visiting lots of places, paddling, boat trip, lots of tasty dinners out and cream teas!
Safe to say I was knackered every night after being out during the day but it was worth it and there was no way I was going to let my lungs not let me go out and enjoy myself, no matter how tiring it was! Mum did make sure we had plenty of tea/ice cream/cake breaks so I could get some energy back (always a good excuse for some yummy food!)
I won't go on and on with a day by day synopsis as I'm pretty sure most of you will fall asleep half way through! I just want to go back, such a beautiful place :-) and the sea air does make you feel better, my lungs feel heavier back home - maybe I could get a holiday home by the sea on the NHS ;)
I've got a week left and then I'm back at work again. This summer has gone so fast but I think spending the first week in hospital, the second week still on IVs at home and the third week recovering I feel like I've wasted some of it - but never mind.
I've got an appointment with the neurologist soon about my silly leg pain, all the test results came back ok so I think it's going to be either 'you will have to put up with the agonising pain' or maybe some more tests.
Also, I still need to do my exercise test for the Kalydeco check up as I was too poorly at the beginning of the month to do it.
Let's just hope I can keep myself off IVs and out of hospital for a while! Fingers crossed :-) have a lovely week!

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