Despite all the tissues, coughing, phlegm, IVs and nebs I actually think I'm on the mend! I went back to hospital yesterday and they popped me on another IV as I'd reacted to 1 so stopped it and its not enough to only be on one IV! So stated on the Coly but now I've started Timentin which I haven't had for over a year so I'm hoping it'll do some good :)
Only problem is the Timentin is three times a day which is a pain as I'm now also back on my month of Cayston (neb) so I've got tonnes of things to do, how exciting.. I'd do anything to go back to work, I miss it loads and I can't watch anymore day time tv or I'll cry!
My lung function had increased when I went back yesterday, by half of what I had lost which was a surprise. I am determined to get back the other half by next Tuesday and come off IVs! Still getting quite breathy when walking about and doing things but I am able to do more which is a promising sign :)
So lets hope my next blog is me coming off IVs! Apparently Kalydeco should be coming in the next few weeks so keep checking to see if I've got if and how I'm doing :) I need it now so much, it's so close I can almost touch it..just needs to come quicker! I'm very impatient ;)
I've made a list of things I want to achieve this year, especially after Kalydeco when I will feel more well to achieve some of them. Some are silly little things and some more important so we'll see what happens and if I can manage to do them all!
For the next week I'll be doing my 6+ nebs a day, IVs 3 times a day, physio (which I really do need to step up on) and hopefully this chest infection will realise its not wanted and will leave!